I am, despite this public way of telling you about it, a rather private person. I don’t mean that in the sense that I am unwilling to share vulnerable or personal feelings and experiences –obviously, I’m willing to share to the point of emotional exhibitionism. When I say I’m private, I mean that I am deliberate about what I share, how much, in what way, and with whom. Read my journals and one of us is going to have to permanently move to Iceland. Go through my purse or my closets or my nightstand without my permission and you’re dead to me. I decide.
The problem is the waiting room.
Before you can enter some of the oldest and largest vaults at Gringotts Bank (the wizarding bank in Harry Potter for those of you who don’t read), you have to pass through a waterfall that clears away any enchantments you may be trying to use to enter the vault under false pretenses. If you have tried to conceal or change your identity, if someone or something else is controlling your behavior, if you have tried to protect yourself in any way from exposure or vulnerability to what could be inside, then it is all washed away. You are just you.
The same thing happens to anyone who enters the Children’s West Rehab Center waiting room, only it’s the air swirling around the door as you walk in that breaks all the spells, not a waterfall (which would be impractical and inconsiderate in such a cold climate). You walk in with all of your protective enchantments and it all gets blown away. Everyone sees who you are. Everyone sees what you’re dealing with.
If you are a regular, you are dealing with scooters or wheelchairs or companion dogs or leg braces that make your little peanut cry because they hurt. Or you are dealing with tiny little helmets, tiny little glasses, tiny little hearing aids. Your son cries about everything, your daughter can’t properly metabolize food. Your granddaughter has cerebral palsy, your grandson has a heart condition.
Now YOU have a heart condition.
What do you do? There was a woman once who spent the whole hour she was waiting doing yoga poses and stretches. I rolled my eyes until her son came out after his physical therapy session and I overheard her talking with the therapist about how she could help her son be more successful with eating and drinking. He was at least fifteen years old. There was a homeschooling mama with a church bell ringtone who used the time to drill her older daughter in reading; a tense, germaphobic lady who only allowed her impeccably-dressed children to touch toys she brought with her and sanitized before and after they were handled; a maniacally positive mother who practiced tap dancing and jazz routines with her five-or-six-year-old daughter, who played along but didn’t seem convinced of how much fun she was supposed to be having.
You walk in with all of your protective enchantments and it all gets blown away. Everyone sees who you are. Everyone sees what you’re dealing with.
But most of us talk. We tell each other what happened to our children, what happened to us, what keeps happening. We tell each other about the doctors who practically bound across the waiting room at Mayo to tell us surgery went well, or about that nurse at Children’s Hospital downtown who would not rest until she found a way to bathe a child without getting the electrodes in her hair wet (an elaborate system of plastic Target bags and rubber bands). We tell each other about the schools and programs we’ve found to make it all easier (horse therapy, art therapy, water therapy, music therapy) and the schools and programs that haven’t figured it out yet. For several months, my dear childhood friend Lindsay, whose son gets therapy from time to time, met me in the waiting room with coffee and we got to have a built-in Mama date every Wednesday afternoon.
Of course it’s not just mothers waiting –Thad has been one of my favorite waiting room pals. For at least a year, Caroline’s appointments coincided with his granddaughter’s, so every week, Thad and I talked cooking (he was an old-school gourmand –he made his own sausages and everything), gardening, music, antiques, parenting, traveling, families, weddings, home design, life. Thad is marvelous –I miss him. His daughter-in-law doesn’t drive and he’s retired, so he brought them to the rehab center every single week. Maybe we’ll be on the same schedule again this summer.
I wouldn’t say I’m friends with these people in the conventional sense (with the exception of Lindsay) –it’s more like we all operate the various small businesses of the same unethical, sadistic bastard. We all cry about it, we’re all degraded by it, but there’s no choice –we can’t leave; he has too much power and we’ve invested everything.
There is no point trying to control what I reveal to my waiting room colleagues –they see everything anyway, just like I see everything about them. We see each other crying and limping and dragging along with our special needs kids as if we have been stricken with the emotional equivalent of each of their physical or neurological afflictions. We have, so privacy is beside the point –it doesn’t protect us from anything except our mutual sympathy and understanding.
Maybe that’s why the protective enchantments we rely upon so heavily out in the world don’t work in the waiting room. Maybe our vulnerability is the most powerful enchantment no matter where we are.
3 thoughts on “Waiting Room”
Really, really beautiful, my dear. I've found that the waiting room is really a crucible for a lot of the families we work with. I love to see the strength and creativity the parents bring with them in coping with the time and emotions involved (the best recent parent brought a banjo and serenaded us while her kiddo had an evaluation). Sometimes you see parents isolating, or getting overwhelmed and know that you're going to have to find supports for them as much as for their children. The best is the relationships that are formed out there. Trading recipes, recommendations for schools, therapy tricks and sometimes just trading war stories. It's all such powerful stuff. Thanks for sharing this.
That was from your old pal Becky V, by the way.
Thank you, Sweet Becky… that means extra coming from you –partly because of your profession, of course, but also because you're YOU and I really love and admire you. xxoo